Once again I went to the brink of not updating the blog. Anyhow, it is all safe and sound now, for the moment at least as I am back. So, without much ado let get to the point.
I am somewhat all set for my surgery on next Tuesday (March 3). Finally, I have made the decision to go with my right eye to be transplanted first. Last 2 weeks I have been seeing Jess (my optometrist) to get my left lens better fitted. We are still working on it. I’ve noticed in the last one month my vision has actually deteriorated in both eyes (both are equally major candidates for transplant). Anyhow, lets get back to transplant preparation for now.
Today I have stopped wearing my right lens. On my optometrists advice I am keeping the last two days before the surgery lens free. It is more of a precaution to reduce bacterial activity in the eye before it gets operated. I don’t think it is mandatory but it is always better to take as many precautions as you can. So I am relying on the lens on the left eye from now on. Vision isn’t really any great with that one. But that’s all I’ve got now, so have to deal with it. Right eye is impossibly blur without any lens on. Will try to document how it changes after the surgery.
Signing off for today. I don’t think I will be making any more posts before the surgery.
Ok… Time to introduce Jess, my optometrist. She along with Richard (the senior associate in their optometry practice) has been looking after my eyes and contact lenses for last one year or so. I started with Richard but he is extremely busy to give regular appointments. It took me more than a month to get my first appointment with him. So Jess is the one who regularly sees me. I like her.
Anyhow, the reason to bring all this is up now is that today I had my latest lens checkup. This is important in resolving my dilemma on the choice of the eye to be operated first. At this point, the ongoing issue still remains: The left with better vision but lesser comfort and the right with better comfort but worse vision. I guess end of the day, vision is more important and that’s what Jess also told me today. Hence, we are now going to try to improve comfort on the left eye. My next appointment is on coming Thursday. We’ll take it from there and I’ll then have 2 weeks to judge the comfort level. If that proves to be a relative success, I’ll go with right eye to be transplanted.
By the way, today I also paid the service fee for the donor cornea. Yes, cornea itself isn’t sold (it is free) but there is service fee attached to it as it costs to store it plus the administrative cost. This service fee is rather high (A$1747) but apparently and hopefully I’ll get 100% of it back from my private insurance.
The first transplant has been scheduled on March 3, 2009. I had to go through a 7 months waiting period to get this date. I guess, cornea is scarce. Anyhow, as both eyes need to be transplanted as soon as possible, the surgeon has left the decision to choose the first eye to be operated entirely on me. And as usual, I am confused.
Currently, my right eye is put for transplant. I can change it even the day before the surgery. With my current RGP lenses the corrected vision is slightly better in my left eye than the right. But the fitting is more uncomfortable on the left. Hence the dilemma. Right now, my optometrist is trying a new fit on the right to make the vision slightly better in order to make it at par to the left. If this turns successful, I’ll change the transplant choice to the left as it was at the commencement of this whole episode. Yes, originally left one was put to be transplanted first. I’ve got you all confused, haven’t I? 🙂
Here I am back again making a post in this blog after three and a half years. My original plan was to keep a sort of a diary that documents my journey with KC. The idea was to make it an informative blog which may come as an aide to other KCers. That didn’t happen. Perhaps, KC has become such an integral part of my life that I couldn’t really narrate a separate account for it. Living with KC for almost a decade has faded all my memories of a life without it. I don’t really remember a life without blurred visions, RGP contact lenses, always stressed and often painful eyes, the occasional headaches and a stressful wake up routine every morning. However, life hasn’t been bad contrary to how it has just sounded in the last sentence. All of those pains and adjustments just become your routine and then the life becomes just as good or bad as of any other person on your morning train to work.
Anyhow, now coming to what prompted me to come back here again. Lets cut to the chase; KC in my eyes has progressed to such an extent now that I need a cornea transplant in both. One eye would be transplanted first and if everything goes well the other would be transplanted a year later. This is a new turn again from a routine that I’ve lived with and got used to over the years. This is another journey to the uncertain novelty. So I am here again with my original intended mission to make an informative diary of this experience which may or may not help someone including myself.
So here it starts with the next post…
I just came to know about the Boston Scleral Lens. Seems to be a very effective option for many (e.g. people with dry eyes, RGP intolerance), costly though. But as I read, the cost varies with ones ability to pay as the Boston Sight Foundation shares the cost. This site can be sought for detailed info: http://www.bostonsight.org/